We are inviting parents and adults born preterm to help us with the first stage of neoWONDER. We want to find out what you think about data linkage, and what information about the future you want to know about your child/yourself.
Small Focus Groups To Help Co-design The Research
What will I do?
Help design a survey to find out what information (available from existing datasets) are important to patients and parents. This survey will be disseminated widely.
When?
October or November 2020.
How long?
1-2 hours virtually. You will be remunerated for your time.
Surveys To Tell Us What You Think
What will I do?
Complete a paper/on-line survey to tell us your thoughts about data linkage and information you would like to find out about long-term outcomes.
When?
November or December 2020.
How long?
This short survey should take around 15 minutes to complete. There will be a chance to let us know if you wish to take part in one-to-one interviews.
Interviews to tell us what you think
What will I do?
You will have taken part in the survey, and be invited for a one-to-one virtual interview.
When?
November or December 2020.
How long?
1 hour. You will be remunerated for your time.