For babies born premature or sick
Bliss is the national charity that exists to give every baby born premature or sick in the UK the best chance of survival and quality of life. We champion their right to receive the best care by supporting families, campaigning for change and supporting professionals and enabling life-changing research.
Professor of Medical Statistics, Imperial College London
Alex Bottle’s research focuses on helping managers, doctors and patients understand information derived from analysing complex databases. His research involves measuring and monitoring the quality of healthcare in hospital and in the community by interrogating large national databases. Alex brings to neoWONDER statistical methodological expertise for handling large volumes of “real-world" administrative and clinical data.
Senior Clinical Lecturer and NIHR Clinician Scientist at the Department of Child & Adolescent Psychiatry, King’s College London
Johnny Downs works on the Maudsley BRC Clinical Record Interactive Search (CRIS). He has a particular interest in analysing routine electronic medical records to examine risks factors and outcomes for childhood neurodevelopmental disorders. He works within an interdisciplinary group of like-minded clinicians, data scientists and patients with expertise in data security, record linkage and natural language processing. They focus on ‘applied informatics’ approaches which maximise the potential of health, education and social records to improve child and adolescent health care. He brings to neoWONDER expertise in data security, record linkage and natural language processing.
Professor of Child Development, Department of Health Sciences, University of Leicester
Samantha Johnson is a developmental psychologist whose research is focused on understanding and improving developmental, psychological and educational outcomes for children born preterm. Samantha has contributed to national working groups including the NICE Guideline Committee for the development of the first national guideline for the developmental follow-up of children and young people born preterm. She is an Associate Fellow of the British Psychological Society and a member of the Strategic Research Group of the British Academy of Childhood Disability. Samantha brings to NEOWonder expertise in the assessment of long term developmental and educational outcomes for babies born preterm.
Clinical Professor of Public Health Swansea University and Honorary Consultant with Public Health Wales NHS Trust
Ronan led the development of the SAIL databank and has an interest in the use of multi-sectoral data linkage in supporting observational and interventional clinical and population health studies. He brings to neoWonder expertise in the creation and analysis of total population privacy-protecting cohorts.
Professor of Neonatal Medicine Imperial College London and Consultant Neonatologist Chelsea and Westminster Hospital
Neena Modi leads the Neonatal Medicine Research Group at the Imperial College Chelsea and Westminster campus. The research group includes the Neonatal Data Analysis Unit that manages the National Neonatal Research Database. This was established in 2007 by Professor Modi and colleagues. Neena brings to neoWONDER expertise in curation of large population datasets from “real-world" data and her clinical neonatal expertise.
Academic Lead in Health Economics and Professor of Health Economics at the Nuffield Department of Primary Care Health Sciences, University of Oxford
Stavros Petrou’s research portfolio draws from a diverse funding base and covers both policy-relevant economic evaluations of diverse interventions, and methodological work. A core theme of his research over the past 20 years has been the study of economic aspects of perinatal and paediatric health and health care, encompassing trial-based economic evaluations, economic evaluations based on decision-analytic models, systematic reviews, preference elicitation studies, and analyses of both cross-sectional data and cohort study data using econometric techniques. Stavros brings to neoWONDER health economics expertise in the preterm population.
Professor Emerita at McMaster University of Canada
Professor Saigal is internationally renowned for her longitudinal follow-up studies of very preterm infants from birth to the fourth decade at adulthood and has published extensively on the long-term developmental, behavioural, psychological, and cardiometabolic sequelae related to prematurity. Her studies also focus on the impact of prematurity on quality of life and has published a book of letters that provide a description of life from the perspective of adults born preterm. She cofounded the Adult Born Preterm International Collaboration (APIC). She brings to neoWONDER expertise in study design and analysis of long-term physical health outcomes.
Senior Research Officer, Social Science department, University College London
Mary Sawtell is a researcher with extensive experience integrating qualitative and quantitative method for maternity and child health research. Mary brings to neoWONDER expertise in public and patient engagement, facilitating focus groups, surveys, interviews, and synthesising the results.
Professor of Perinatal and Paediatric Environmental Epidemiology, Mohn Chair of Population Child Health, Director of the Mohn Centre for Children’s Health and Wellbeing, Imperial College London
Professor Toledano brings over 20 years of experience designing and setting up large cohort studies as well as working with the Small Area Health Statistics Unit (SAHSU) to investigate environmental impacts on reproductive and child health. She has extensive expertise in the linkage of routine birth data sets to large scale environmental and census datasets. She brings to neoWONDER expertise in data linkage, and spatial, epidemiological and statistical methodology.
